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Next Visual Snow Study Participation

Discussion in 'Research and Articles' started by eyeonvision, Aug 27, 2014.

  1. eyeonvision

    eyeonvision New Member

    If you suffer from visual snow syndrome and are interested in participating in the next study, please email Prof, Goadsby and Dr. Schankin at VS-Research@headache.ucsf.edu with the following information. If you already sent a brief "I'm interested" email, please RESEND with this information. Thank you so much!

    Name

    Address

    Date of Birth (Day/Month/Year)

    Telephone number

    Willingness to be contacted for research

    Indicating they are allowing us to keep the contact details solely for communication for research… it’s a European data protection thing…



    Brief description of symptoms … I know it is difficult but for an email yes or no to the other symptoms



    Short description of visual symptoms in own words:



    Visual snow: what type (chose one):

    - black and white (i.e. only black dots on white background, white dots on black background)

    - clear (i.e. color of the background)

    - flashing (i.e. always white, brighter than background)

    - colored

    - all of these

    Other symptoms (yes or no)

    - After images

    - Trailing of images in the vision

    - Blue field entoptic phenomenon (i.e. white squiggly lines moving pulsating on the blue sky)

    - Floaters in vision

    - Colored clouds or waves with eyes closed

    - Flashes of light

    - Impaired night vision

    - Sensitive to light

    - Tinnitus
     
    Last edited: Aug 29, 2014
  2. I just heard from Prof Goadsby and he has set up the email address to contact to participate in the next study. The details of the study are not available yet, so basically this is a way for them to build a database of people with VS willing to be contacted when the study is underway. Do not expect a reply from your email for a while, but it is important for you to email this address if you are interested in the possibility of participating.

    VS-Research@headache.ucsf.edu
     
  3. Stu Pidname

    Stu Pidname New Member

    What sort of info does he want us to put in the email?
     
  4. eyeonvision

    eyeonvision New Member

    Stu,

    Here is what needs to be included:


    Name
    Address
    Date of Birth (Day/Month/Year)
    Telephone number

    Willingness to be contacted for research

    Indicating they are allowing us to keep the contact details solely for communication for research… it’s a European data protection thing…

    Brief description of symptoms …

    Visual snow: what type (chose one):

    - black and white (i.e. only black dots on white background, white dots on black background)

    - clear (i.e. color of the background)

    - flashing (i.e. always white, brighter than background)

    - colored

    - all of these


    Other symptoms (yes or no) I know it is difficult but for an email yes or no to the other symptoms

    - After images

    - Trailing of images in the vision

    - Blue field entoptic phenomenon (i.e. white squiggly lines moving pulsating on the blue sky)

    - Floaters in vision

    - Colored clouds or waves with eyes closed

    - Flashes of light

    - Impaired night vision

    - Sensitive to light

    - Tinnitus
     
    Last edited: Sep 12, 2014

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