Hi All As above says I have had this over half my life and seen so many Doctors and Specialists I began to think I was going mad!! Over the past 2 years I also developed Tinnitus/dizziness/pressure in the ears & temples. No one could say what I had or could treat me. By chance I came across some information that made me realize that it is know acknowledged as a condition which made me feel so much better (not going mad and there are people out there going through the same agony). It's just a shame that because it is just recently diagnosed that there is not yet a cure.............Hears to finding one in the very near future!!!