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Had it for 28 Years and Only Just Found Out What it is called!!

Discussion in 'Introductions' started by Vampyrebat, Jan 30, 2017.

  1. Vampyrebat

    Vampyrebat New Member

    Hi All
    As above says I have had this over half my life and seen so many Doctors and Specialists I began to think I was going mad!! Over the past 2 years I also developed Tinnitus/dizziness/pressure in the ears & temples.

    No one could say what I had or could treat me. By chance I came across some information that made me realize that it is know acknowledged as a condition which made me feel so much better (not going mad and there are people out there going through the same agony).

    It's just a shame that because it is just recently diagnosed that there is not yet a cure.............Hears to finding one in the very near future!!!
     

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