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Crowdfunding Site for Visual Snow Research

Discussion in 'Fundraising and Awareness' started by administrator, Jul 17, 2014.

  1. administrator

    administrator Administrator Staff Member

    http://www.gofundme.com/bkyl68

    From the site:

    "Imagine seeing static across your entire visual field 24 hours a day, 7 days a week - even with your eyes closed (visual snow). Now imagine looking at the sky and seeing millions of silver specks flashing and moving everywhere (entopic phenomenon). Now imagine looking at your hand, and then looking away and still seeing your hand for several seconds even though you are no longer looking at it (after images). Imagine seeing the vitreous inside your eye breaking down with cobwebs, spots and strands (floaters). Imagine looking at a stop sign and having the colors fade away (low contrast sensitivity). Imagine looking at a sentence and seeing the same words you are reading floating on top of the text you are looking at (ghosting). Now imagine seeing all of these things, all of the time. Now imagine more visual symptoms developing yearly, monthly, weekly, or daily. Test after test come back normal. Doctor after doctor tell you they can't help. You are scared, alone, and being mentally tortured by these constant visual disturbances that never go away - never. This is what it is like to live with visual snow. It's a true living nightmare.

    Three years ago, eyeonvision.org, collaborated with two neurologists who became committed to finding a treatment to visual snow. They set up the first visual snow study ever, and tested 17 visual snow patients against 17 control (normal) patients to see if they could find any shred of difference between the functioning brain of a VS (visual snow) person, compared to a normal seeing person. The results of the study were released in May and the doctors believe they may have found the area of the brain where visual snow is coming from. This is a huge first step, but it's only a first step. There is more research to be done before we can even hope for a cure. We desperately need your financial support to help us continue on the path to a treatment. Please, I know times are tough for many people struggling to provide for their own families, but anything that you can give will help. Visual Snow Syndrome is a living nightmare with no relief and no escape. Please, donate today."
     
  2. Jackie Vest

    Jackie Vest Active Member

    Can we please sticky this? It is perhaps the most important article at this present time :)
     
  3. Gabriel

    Gabriel New Member

    What we need is someone very popular to give this a shout out
     

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